Fighting and surviving GBM Cancer Thomas Scrivens

It's been a while since I've checked in and made another post. Feels good to have some time now to catch up on some things after some weeks of chemo and radio. Slowly catching up to me now. Feeling really sick in the morning with the toxic chemo drugs and face burns from the radiant heat from radiation. But now I'm finally halfway through week 5 and getting closer to my MRI scan to check up on progress next month. My next MRI will determinate alot of things. I am constantly praying that if I have any regrowth of any tumor, I will go back to square one. If there isn't a tumor, Praise God and I will go straight into a clinical trail. Lots of prayers and positive energy I ask please. If everything goes according to plan, and during the clinical trail no more radiothearpy, however my chemothearpy will be increased with a higher double dosage. Everything is so fast paced with routines. Chemothearpy, Radio, Doctors Appointments, etc etc really ties you're time and day u

Hi everyone! I would like to take this oppurtinity to thank my family, friends and my oncology team for getting this far into week 4 of treatment, and the amazing support behind everything. Such as the fundraiser event which is happening in April and all the generous, kind, beautiful people who have donated money for my treatment and oppurtinity for a clinical trail. Words can't express the word thank-you enough, you have all touched my heart deeply in ways I can't express. To my wonderful family in the UK for organizing a fundraiser night and the buggy run with the mummies you are all amazing! You know who you are. I thank-you. To all my family and friends on Facebook thanks for following me and supporting me! Week 4 of chemotherapy and radiotherapy and the hair is gone! Bits of hair left but will slowly fall out. Feeling more nauseated in the mornings and feeling really hot at nigh time, face turns red after dinner and the drugs kicking in. The journey isn't over ye

14th March 2013 It's like in that movie '50/50' a young man who is diagnosed with cancer and is asked 'Are you feeling numb'? Meeting and speaking to various people around the world who have/had cancer have this numb feeling and to be honest it sucks. Doing the odd 'normal' thing like making a cup of tea or sitting outside watching the view or going for a car ride and thinking at the same time 'I have cancer?' I can kinda understand what the 'numb' feeling is. Don't know if you're going to die anyday or with my situation go mental in the head, unxpecting the unexpected really. You have awesome days like today I got to go with my awesome amazing sister to radiothearpy and go out for lunch and days when you want to vent out as much as you can, but hey isn't it healthy? Each day is milestone and I'm doing okay. My face is starting to really hurt with the radiation and my hair is slowly coming out. If it wasn't for my fami

After being told about my cancer it was time to put words into action. The plan is that I have a 9month treatment involving both radiotherapy and chemotherapy. These two type of methods work best with GBM patients. A long road ahead but never hopeless as I thought. The survival depends on my effort and two way street relationship with the medical team and my emotional mind and spiritual faith. I do radiotherapy at the Epping Medical Specialist Centre here in Victoria. A wonderful dedicated team of professionals who are passionate about saving lives. It really makes all the difference. I do radiotherapy in the afternoons after chemotherapy so by after lunch time I am really exhausted and feeling physically and emotionally drained. Especially they are 'laser' pointing towards my head. But over the last 2 weeks into the progress my body is handling really good it's just when week 3,4,5 I will start to get really sick. (A tight mask is fitted to my face so my doesn't mo

Everyone has those moments in life when you don't forget things. You're 18th birthday, first car or first time you fallen in love. Those sheer moments in life also we experience are moments of pain or devastation. January 26th was definitely not a Saturday morning sleep in as Mum and Dad came to the hospital to see me and have the meeting with the surgeon to discuss the pathology of the Tumor and to see if it was non-cancerous or cancerous. Realistically the last few days I have been emotionally preferring for both circumstances. As it was early morning finished breakfast and was speaking to Mum and Dad about everything. "Whatever it is we will get through it together".  The neurosurgeon arrived and we started speaking. The conversation started positively saying it was a successful surgery with 100% of the Tumor removed (such a blessing) and no complications. However the Tumor has left cancer cells and under the microscope the cells are cancer. The cells are known a

The longest night ever was in ICU expected to be there for another three days was going to be hell. It's a horrible place, small window next to you and patients around you who are much worse off than you gives you pain. Had a really nice nurse standing by me watching closely. The night felt like forever and all I wanted was to see my family. In ICU visiting hours weren't allowed to 11am in the morning and already wanting to see my family at 2am, 4am etc etc. I remember being x-rayed on my chest and was thrilled that I didn't have to move at all really. Amazing! Two lovely gentleman had a portable one. The reason why I was getting x-rayed on my chest is because I dropped dead for 2 minutes during surgery due to lack of oxygen to the brain. Anyway time went by and I started regaining strength. Was able to start drinking by 5am and went into a good sleep. Woke up around 7am and met with the neurosurgeon who was so impressed with the progress with me. Blood pressure was fan