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2017- baby on the way and new career!

I seriously can't believe where has the time gone? Sometimes when you live in the moment you forget what the time is and things slip past you! My gosh it's been a long time writing a blog and can't believe it's coming to the end of 2017. So many incredible exciting things to share. My wife and I have announced we are having a baby boy! With the grace of God we are thrilled and can't wait to start this new chapter of our lives, just to think going back to the early days of chemotherapy and radiation oncology wouldn't think ever I would get this far, especially all the wonderful people for whom I have met along the way and many of them who have been on this journey with the same diagnosis who have passed away. I'm always thinking of them a raising a glass of scotch when I can to them. I miss them so much So can't believe its nearly the end of 2017, new beginnings on the approach. I can't wait to be a father, and be a good father to my little boy. M
Recent posts

Working in the footsteps of those who have helped me. The small things are the big things.

So far, I have been working at St Vincent's Hospital since September last year. It has been a really good, back working and less wondering around the house, barely wondering around the house! I am really starting to enjoy it, as now I am learning more ropes and new techniques to my job. I am a SSA which is Support Services Assistant technical term for Hospital Orderly and Environmental Services. I do a various jobs like patient concierge, patient transport, clincial cleaning, theatre and ICU nurse assistance and much more. Lately I have been given some shifts to work on the cancer ward, which has been a bewildering experience being one myself but serving those patients with my job and sharing my own story has been so worthwhile and doing this course. It is a priceless privileged to help the patients and families get through the start of their journeys. Whether it be nausea pain advice, where to go to seek further help, clinicial trial information or iust bringing them a cup of te

A story just doesn't end here, there is always room for a little more

August 2016. No growth or skrinkage in the tumor size. The specialist Doctors are amazed at the remarkable state of health I am in and what an incrediable journey it has been. On Tuesday last week, I had my MRI and results taken. Officially the doctors have done an official measurement. I only have 3% tumour left. They can't officially say I am in remission as this not used in brain cancer. It could either be scar tissue or risidual tumor. This is the best news of the year! Time to embrace this wonderful news and celebrate!!! Woohoo! C'mon baby!! My eyesight has returned back to normal and regular MRI scans show just a tiny spec of the tumour which may be dead tissue or risidual scar tissue, they can't tell because they need to do a biospy however that is too dangerous as a result it may end up in a wheelchair. It's has been God's blessing on me.  In the last couple of months I have been studying to become a HSA ( Health Services Assistant) or PSA (Personal Services

I am alive, endless opportunities

I haven't had any form of treatment since July last year. All of my MRIs have shown fantastic results since then. Results have shown no growth or regrowth of any tumor and it has been the same since July 2015. I am beating the odds and feeling mentally and physically well for a long long time. Everything is stable and good at the moment. I am starting to feel like myself again, even though I am still attached to this cancer, I must and want to start my adjustment back into the workforce.  Recently I took on a job for Turfgrass Lawn care company part time causal just to learn about a new industry, but also earn an honest wage and feel good. Primarly to get back to being a normal being. This year has been pretty amazing, lots of family and friends weddings and engagements, lots of birthdays and had a wonderful time at Mulwala Yarrawonga Golf resort for my 23rd birthday. Played golf and took stock in the beautiful surroundings around us. I am still on the Clinical Trial at the Oliv

No treatment, long break and a great way to end the year

I haven't had any treatment since July. Wow and I feel awesome. My eyes have returned to normal good and my general health and well-being is beyond exception. I am on a long prolonge break from having any infusions to give my body some time to heal and harvest the trail drug. This means I can spend some time being an awesome regular human, or whatever that means? But its brillant! My eyes can have a break from being bonbarded and hassled with. I am also focused on loosing weight and getting fit again. In the last month I have been actively trying to find work and seek part time casual work to slowly get back into work. A transition really and amazing news this week manage to get a part time job as a Gardener. This will help me mentally and financially.  What an amazing blessing. I am not receiving any ABT 414 drug, I still have to attend appointments, checkups, MRI scans and opthalmology appointments. This is a requirement from the Clinical Trial, however I dont mind. I get to h

A supportive thankyou to all of my support friends and family who have supportive me

Hello to all my supportive friends and family. from the graciousness of my heart I do apologize for not being able to reach all of you or reply individually. However would like to let you know I am so appreciativr and overwelmed with the words and financial support. Its been such a long time since I last did a blog post. So much has happened. I got married to the love of my life Jessica on 17th October 2017 and had the most magical wedding day ever. I got to marry my best friend. Went on my honeymoon and also survived another blessed family christmas lunch. 2014 ended with such a positive medical result indicating that my tumor hasn't grown nor shrunk. Moving into 2015 as a result being part of a Brain Cancer Clinical Trial I am currently on which is ABT 414 my eyrs have becone mych worse. Cornea Deposits, cornear damage and dry eyes are many other related eye issues. This has impact my ability to not work, my pension and I had to defer my course in Diploma of Community Services.