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Showing posts from 2015

No treatment, long break and a great way to end the year

I haven't had any treatment since July. Wow and I feel awesome. My eyes have returned to normal good and my general health and well-being is beyond exception. I am on a long prolonge break from having any infusions to give my body some time to heal and harvest the trail drug. This means I can spend some time being an awesome regular human, or whatever that means? But its brillant! My eyes can have a break from being bonbarded and hassled with. I am also focused on loosing weight and getting fit again. In the last month I have been actively trying to find work and seek part time casual work to slowly get back into work. A transition really and amazing news this week manage to get a part time job as a Gardener. This will help me mentally and financially.  What an amazing blessing. I am not receiving any ABT 414 drug, I still have to attend appointments, checkups, MRI scans and opthalmology appointments. This is a requirement from the Clinical Trial, however I dont mind. I get to h

A supportive thankyou to all of my support friends and family who have supportive me

Hello to all my supportive friends and family. from the graciousness of my heart I do apologize for not being able to reach all of you or reply individually. However would like to let you know I am so appreciativr and overwelmed with the words and financial support. Its been such a long time since I last did a blog post. So much has happened. I got married to the love of my life Jessica on 17th October 2017 and had the most magical wedding day ever. I got to marry my best friend. Went on my honeymoon and also survived another blessed family christmas lunch. 2014 ended with such a positive medical result indicating that my tumor hasn't grown nor shrunk. Moving into 2015 as a result being part of a Brain Cancer Clinical Trial I am currently on which is ABT 414 my eyrs have becone mych worse. Cornea Deposits, cornear damage and dry eyes are many other related eye issues. This has impact my ability to not work, my pension and I had to defer my course in Diploma of Community Services.