Fighting and surviving GBM Cancer Thomas Scrivens

'Not all those who wander are lost'. One of my most favourite quotes by JRR Tolkien (Author of Lord of the Rings Trilogy). I think it is actually means a lot in my situation. I find some days in between treatments often find myself lost. I wish I could have more treatment, I get anxious not knowing if it is really working, or what the future holds. I see my friends going to to Uni, or starting new jobs and I was supposed to be in their shoes? However, I must not reflect on that and go down my Cancer Journey path. I feel lost as know one really I know personally has gone though what I am going through exactly, a person who has GBM. Recently met a few guys who have had cancer and it did feel really comforting. I knew exactly what they were saying, the emotions, the experiences, the lost of friends and family, and the lost of their own personal self. You will never be the same person ever again, and I feel not the same person, but too be honest I am loving this version of myself...

(I am writing this now, as my dog as unfortunately surprised and shocked me as I had to rush him to Veterinary surgery this lunchtime as I found him in the lounge room with blood everywhere, he is now fighting for his life with a serious heart problem, infectious mouth disease and gastro, all of a sudden) Ever since I have come home from surgery, my best friend, my companion for over 11 years has notice the changes in me. Charlie has always been affectionate and protective of me, but ever since I was diagnosed for no joke he has become more affectionate and aware of what's going on. When I first came home from surgery, a few nights I would be woken up by Charlie licking my scar. Worried about me and seeing what he can do to help. When I first started radiotherapy and the chemotherapy cycle 1 treatment he started to become more clingy. The chemotherapy toxic tablets I was taking I had to do it in a specific cycle...

4 weeks of no radiotherapy and Chemotherapy. It's like a small dose of Heaven. Being touched based with the world again and being bendable. What does a cancer warrior do in his time off? Despite the body detoxing the toxins and crap out of the body, he finds his place in the world again. Sure I have to go into hospital for the clinical trial but that is a great day. Better than a birthday or Christmas, a chance to save my life. 2 weeks ago I promised my partner Jessica if my MRI came back stable we would celebrate. I promised her we would spend a few nights in the city (praying I'm physically well) and be a couple again. No cancer talks, no appointments just an appointment in a beautiful hotel and a restaurant along south bank. Tell you what my MRI came back stable and we were fully over the moon. It was our 1 year anniversary this year but couldn't celebrate it due to bring in hospital however I have been saving up for nearly the whole year for that occ...

Last Saturday night was a party of a lifetime for me. Words cannot describe how blessed I am to have have wonderful family and friends attend the event and the businesses and people who I've never met come down and celebrate my life and help raise money and awareness of my fight against GBM. It still shows that there are some amazing people in this world, who are willing to give rather than recieve. I think this life has so many good people and you know what? Good things happen to good people too! My wonderful sister Sarah, brother in law Michael and my other amazing sister Amanda organised an Fundraiser to help support myself and my family to raise money to help with expensive medical treatment and help raise money to help me through this Clinical Trail I am on. I love you guys so much, to Heaven and Earth and back! This amazing night was held at the Hidden Valley Golf & Country Club with around 250 people attending with lots of auction pri...

''Do you ever wonder if we make the moments in our lives or the moments in our lives make us? Ever wonder how long it takes to change your life? What measure of time is enough to be life-altering? Is it four years, like high school? One year? An eight-week walking tour? Can your life change in a month, or a week, or a single day? We're always in a hurry to grow up, to go places, to get ahead…but when you're young, one hour can change everything… '' Over easter this year, very much came to a halt for me. Both the chemotherapy and radiotherapy all came up at once and felt ever so sick over the easter break, but still manage to find strength in my heart to see my sister celebrate her birthday, it was just so awesome to do something so 'normal' and very special at the same time. I'm coming to an home run at the moment with my first cycle of treatment and then I can't wait for my much needed break for 2 weeks, depending on a stable MRI result. I jus...

It's been a while since I've checked in and made another post. Feels good to have some time now to catch up on some things after some weeks of chemo and radio. Slowly catching up to me now. Feeling really sick in the morning with the toxic chemo drugs and face burns from the radiant heat from radiation. But now I'm finally halfway through week 5 and getting closer to my MRI scan to check up on progress next month. My next MRI will determinate alot of things. I am constantly praying that if I have any regrowth of any tumor, I will go back to square one. If there isn't a tumor, Praise God and I will go straight into a clinical trail. Lots of prayers and positive energy I ask please. If everything goes according to plan, and during the clinical trail no more radiothearpy, however my chemothearpy will be increased with a higher double dosage. Everything is so fast paced with routines. Chemothearpy, Radio, Doctors Appointments, etc etc really ties you're time and day u...

Hi everyone! I would like to take this oppurtinity to thank my family, friends and my oncology team for getting this far into week 4 of treatment, and the amazing support behind everything. Such as the fundraiser event which is happening in April and all the generous, kind, beautiful people who have donated money for my treatment and oppurtinity for a clinical trail. Words can't express the word thank-you enough, you have all touched my heart deeply in ways I can't express. To my wonderful family in the UK for organizing a fundraiser night and the buggy run with the mummies you are all amazing! You know who you are. I thank-you. To all my family and friends on Facebook thanks for following me and supporting me! Week 4 of chemotherapy and radiotherapy and the hair is gone! Bits of hair left but will slowly fall out. Feeling more nauseated in the mornings and feeling really hot at nigh tim...