Skip to main content

A story just doesn't end here, there is always room for a little more

August 2016. No growth or skrinkage in the tumor size. The specialist Doctors are amazed at the remarkable state of health I am in and what an incrediable journey it has been.

On Tuesday last week, I had my MRI and results taken. Officially the doctors have done an official measurement. I only have 3% tumour left. They can't officially say I am in remission as this not used in brain cancer. It could either be scar tissue or risidual tumor. This is the best news of the year! Time to embrace this wonderful news and celebrate!!! Woohoo! C'mon baby!!

My eyesight has returned back to normal and regular MRI scans show just a tiny spec of the tumour which may be dead tissue or risidual scar tissue, they can't tell because they need to do a biospy however that is too dangerous as a result it may end up in a wheelchair. It's has been God's blessing on me. 

In the last couple of months I have been studying to become a HSA ( Health Services Assistant) or PSA (Personal Services Assistant) in Hospitals or Aged Care facilties to become hospital ordly or theatre technician. 

This study hass been fantastic so far and can't wait to get a job and contribute back into the health system. So far with my journey I still get wonderful people supporting me and I have managed through my cancer networks to find local people who I am supporting through mental health support and encouragement. Its so good to help one another, especially motivation and let them know they are not alone with this terrible cancer and that there is always hope, so far I am still on the ABT 414 clinical trial and continuing regular checkups, blood tests, MRIs and GP appointments, I am so blessed.

It is time to relax and enjoy my new home and garden. Take some more time for personal reflection and plan and dream. I can invest in people and invest in myself. Aspire and inspire those who are in need and start looking into doing the things I want to do piror to getting cancer. 

 I wouldn't be here if it wasn't for all the wonderful medical team at the Austin Hospital Olivia Newton John Cancer and Wellness centre, my wife, family and friends and all the generous donations. I will continue on this journey. Thankyou all.

Comments

Post a Comment

Popular posts from this blog

2017- baby on the way and new career!

I seriously can't believe where has the time gone? Sometimes when you live in the moment you forget what the time is and things slip past you! My gosh it's been a long time writing a blog and can't believe it's coming to the end of 2017. So many incredible exciting things to share. My wife and I have announced we are having a baby boy! With the grace of God we are thrilled and can't wait to start this new chapter of our lives, just to think going back to the early days of chemotherapy and radiation oncology wouldn't think ever I would get this far, especially all the wonderful people for whom I have met along the way and many of them who have been on this journey with the same diagnosis who have passed away. I'm always thinking of them a raising a glass of scotch when I can to them. I miss them so much So can't believe its nearly the end of 2017, new beginnings on the approach. I can't wait to be a father, and be a good father to my little boy. M...
3 comments
Read more

No treatment, long break and a great way to end the year

I haven't had any treatment since July. Wow and I feel awesome. My eyes have returned to normal good and my general health and well-being is beyond exception. I am on a long prolonge break from having any infusions to give my body some time to heal and harvest the trail drug. This means I can spend some time being an awesome regular human, or whatever that means? But its brillant! My eyes can have a break from being bonbarded and hassled with. I am also focused on loosing weight and getting fit again. In the last month I have been actively trying to find work and seek part time casual work to slowly get back into work. A transition really and amazing news this week manage to get a part time job as a Gardener. This will help me mentally and financially.  What an amazing blessing. I am not receiving any ABT 414 drug, I still have to attend appointments, checkups, MRI scans and opthalmology appointments. This is a requirement from the Clinical Trial, however I dont mind. I get to h...
1 comment
Read more

Lost in a wilderness of horrors

Last couple of nights have been really tough, not being able to sleep. Long being awake by a thousands thoughts running through my mind. Its now nearly October and I don't even know where I am in the fight. It's not like a broken arm, you know when you will be healed, this Cancer is so up in the air, not even at arms reach to take control. Recently, I was out of action with a 10 day flu, which is serious because it can lead to death and can quickly shut my body down because my immune system is defenceless at this time. It is so hard to find strength and motivation when the whole world keeps going, your still doing treatment, and having to cancel so many catch ups with friends due to sudden illness from chemotherapy reactions. I am not one to sit at home all day, I love driving, coffees, movies and hanging out with friends and family. I am currently on a new Infusion Clinical Trial, which is a all day Infusion, the staff are lovely and the hospital is excellent. I think I ha...
4 comments
Read more